Showing posts with label pain. Show all posts
Showing posts with label pain. Show all posts
Saturday, September 11, 2010
Recovery is the New Category
& there are new types of victories. The pill countdown, the pain's clean edge, tart and bright as a razor -- so defined, no longer muffled or suffuse. It dwindles to this hard clean edge the glows like neon in the dark. I am aware of parts of my body & I search for pictures: networks and ribbons. And there are phantoms that wander over my skin, a new type of radiculopathy -- syndrome spreading sensations from point a to point b -- something is felt where nothing touches. & there's a pulse to it, like waves.
Tuesday, July 27, 2010
I wish I could control my feelings. Everyday is like a little hill and its up up up then down down down. One little thing -- like seeing an old note -- and then the head bells and asylum and the pills. Everything is a alive and super -- outsized and fleeting. Gargantuan mists. What is that? Too big to put your arms around it. And the fingers slip through.
I think of pain like a knotted rope. One hand over the other to touch taut rope or knotted rope. The rope is rough and prickly. It makes me cough.
"But you're so young..." I feel old and broken. And yet I know one day I'll look back, shake my head at my former self. "Fool!"
I imagine another version of myself -- someone like you -- rocking back and forth on her heels, confident and brutal -- "My back is yours. Fix me, doc."
For every knot there is a shadow self who knows just what to do, knows what we should have done. Paper dolls for every bone. Paper bones. Flutter, flicker, let go.
Thursday, July 15, 2010
the body is a ghost
or host to ghosts -- cells &
helicopter text ticky-type
and symptom syntax of every
physical memory crushed
into tell-all fibers
and clues -- fibbers &
the glue-clock pushing
through. The inside marks
where bone tics two by two
legs arms hands and mirrors
say two heads too. False
eyelashes and blue mascara
the blue-green veins pulled
through, suffused with pills:
powder dolls. Our little body
house too full -- there's
nothing else to do save
cutting through and then
stitch stitch new & ta-da!
it isn't them -- it's you --
the ghost you never
knew you knew.
helicopter text ticky-type
and symptom syntax of every
physical memory crushed
into tell-all fibers
and clues -- fibbers &
the glue-clock pushing
through. The inside marks
where bone tics two by two
legs arms hands and mirrors
say two heads too. False
eyelashes and blue mascara
the blue-green veins pulled
through, suffused with pills:
powder dolls. Our little body
house too full -- there's
nothing else to do save
cutting through and then
stitch stitch new & ta-da!
it isn't them -- it's you --
the ghost you never
knew you knew.
Monday, July 05, 2010
Saturday, June 19, 2010
Fear
The recurring image is that I'm on some sort of conveyor belt heading toward chopping jaws -- serrated, hungry -- and I can't get off.
There is too much information. It is too confusing.
The system is overwhelmed.
There is more bargaining.
There is a fantasy of being disembodied, serene. Another fantasy is of being buoyant, tranquil. There is water and sun and warmth.
Today, we walked on the bluffs that overlook the beach. I was iced, medicated. It is our fifth wedding anniversary. I scan the horizon for breaching whales, diving pelicans, otters floating in the kelp. We hold hands and I am so thankful that I am not alone, although I resent the injury and how it has taken over my body, our lives. Later, down the path, a rabbit darts out of the brush and pauses, one paw raised, and then scampers off. Two girls pull a wagon full of pillows, and atop the pillows is another girl. She is lazily eating from a box of fig newtons They're playing a game, they tell us, and I feel happy for them. The ocean air is sweet and crisp and I imagine leaping off the cliff into the waves. I crave the weightlessness of being in water.
The thing is, I'm terrified of having surgery, and today, as I read through the files I'd requested from the doctor's office, I see that all the arrows point to it. I'm worried that if I decline surgery, I will be punished. I've been told the my condition will be declared "permanent and stationary." I took messy notes in shorthand, but how can I remember in this haze? It's happening too fast.
Friday, June 11, 2010
ANGER
One of the feelings I have frequently is anger. People in pain are often angry. Pain can be invisible, and for a long time, I tried to make sure it remained invisible: suppressing winces, groans, tears. Those things emerged, of course -- one can't hold those things in forever.
There are also the psychological dimensions. I've been told that what I've been doing a lot of is bargaining. I keep coming up with bargains. Maybe if I keep going to work, I won't be injured. Maybe if I don't eat sugar, I won't be injured. Maybe if I do these stretches, I won't be injured. Maybe if I take these pills, I won't be injured. Maybe if I walk to the mailboxes and back, I won't be injured. Maybe if I keep my feelings a secret, I won't be injured.
So I can't be surprised that people don't know. I can't be surprised that people expect me to be operating at full capacity if I don't tell them how much pain I'm in -- if I don't tell them that the drugs make me feel like I'm under water, or in a snow drift, or stippled by pins. I can't count change at the grocery store, or look for a lost shoe, or fold paper evenly, or spell.
I'm angry. I want my life back. I want to be able to move forward with my life plans. I want to be able to write poem, finish a story, visit with friends. I want to be able to sit in a movie theater, drive my car, put on my underwear -- I want to do things without feeling the searing, excruciating pain.
I want people to be nice to me.
Pain has a sort of myopia. I notice things like the textures of clothing: so many things are too itchy and my skin is on fire. The drugs give me dry mouth and everything tastes awful. I'm hyper-attentive to the ice pack, the heating pad, the myriad analgesic jams and jellies that smell sticky-sick and sweet, the dilapidated mountains of pillows upon which I try to arrange my body like a bag a of broken sticks or rusty hinges.
I do not want to feel guilty about building up a tolerance to the drugs.
I do not want to be hysterical.
I hate myself for being so self-absorbed.
Tuesday, June 08, 2010
Tuesday, June 01, 2010
Sunday, May 30, 2010
I dream of being organized. of being out of pain. of having a gut full of crystals: opiate residue. Like the crystals that consumed the box for the oil gusher in the gulf. crystals in the so deep it's so cold. At what point does one decide -- that's it: cut me. It's been 5 months. Is that too long to wait? Not long enough? There are moments when my mind is available, and I feel like myself, and I look at the date and I can only wonder what I've been doing. What did I do during February? Was I here? Did you see me?
Saturday, May 29, 2010
clean scissors, I beg
for rescue, for a pin
to tend the pain: pink
not newly, slit red
then blue. In purple
liquids I store
the pulse: thump
thump in the dark
narcotics. Fizz-
winged, my fissures
shore: approach
the winking beacon
of a still-life body:
smooth and porous, pried
free from every
pinching reign: stung
veins and stony ventricles.
Thursday, May 13, 2010
A few kind words can go a long way. Each time someone is kind to me, I feel like breaking. The mirror silence of a still pool: ripples the weight of great lakes. Their glaciers staggered down. We measured the mountains. This small sadness I can hold in my hands, taste it on my tongue. Salt showers and the glow inside bones -- lit up, electric signs. The desert is the pain of home, the home away. This withholding -- it makes me long for it all the more. Sympathy is a craving. The stone around us turns to ice.
Tuesday, April 27, 2010
Things You Can Do with a Ghost
Go all the way
up the hill
to the tippy-
top. Hold your
glass hand
still. Pour ink
into all the
corners. Invent
the perfect
circle. Kiss
the friends you used
to know. Hold
your breath inside
the house. Sew
the door with
an answer. See
into the mirror
before you see
yourself. Change
a bone to a bowl
of milk. Leave
a note so the doctor
knows just where
to go, where to open.
Thursday, April 08, 2010
Friday, March 26, 2010
Things have been difficult to talk about. Like talking underwater or trying to talk during sleep. These are the metaphors that come to me over and over again. My mind is underwater; it's in a fish tank, water artificially blue and antiseptic. All I want to say, over and over again is I'm sorry. The refrain I cling to when I'm afraid. I'm sorry for being afraid. At night, narcotic waves of salt washing over me, the bed is a giant cradle rock rock rocking on jagged swirls. On the mri, there was a wash of black, blooming out of the vertebrae, like ink releases from a squid. See there -- how your nerve disappears? I nodded, not knowing what I was looking at but feeling it light up neon red and electric. The best cure is distraction -- distractions of love, making ready, celebration. This is what makes the body numb. The combination of champagne and vicodin and I'm saying things like you could cut me and I wouldn't feel it or care. And then there was a needle the length of my forearm (from finger tip to elbow) and the nudging in of the needle, and the x-ray pictures (I've never been so photographed) and then sitting up, the world yellowing and all the sounds swelling up and I've fainted sitting up. It's called vasovagal syncope. It's the oldest nerve in the body, I'm told. It bypasses the cerebral cortex and goes right to your gut. It felt like stepping off the side of a cliff -- yellow and silent-- and I'm in the paper hospital dress reaching my hand out into the air, unable to make a fist.
Wednesday, February 24, 2010
injury
I experience a little burst of optimistic extroversion about twenty minutes after I take Vicodin. I wish this feeling lasted longer. The chemical nature of the feeling intrigues me. Because it is a feeling... like a mood...not a sensation.
The aspect of my injury that is the most curious to me is not the pain, but the lack of strength...the weakness and the absence of a reflex in my right ankle. Several times a day, I try to stand on my toes. First I try the left leg, and I go up, almost bouncily. Then I try the right, and I wobble wobble wobble fall; I just can't do it. stand stand stand I say, and almost nothing happens. It reminds me a little of that feeling of trying to yell or talk in a dream. Those moments of sleep-space are interesting. Sometimes the desire to speak is so powerful that one wakes up mid-sentence.
I am told that I talk in my sleep often.
Time goes by, hazily. It is a February sort of way. Muffled, with narration.
This also means that I have had to take a break from the birds.
I've been thinking about fur. The next project involves fur, faux and otherwise. I cannot imagine wearing "real fur." When I think of it, I see flashes of Carrie covered in pig's blood. There is a sensitivity to it. It feels painful. "It hurts to look at you."
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